My beautiful boy...

by The Squirrell 28. February 2013 13:51

But no matter how low things get, one look at the

most beautiful boy in the world, makes a tear come to my eye....


I cannot express how much I adore my baby boy...



I am SO proud of him. x


Bad news~?...

by The Squirrell 27. February 2013 13:45

Went back to QEH on 26th Feb for my rescheduled operations/investigations.


Feeling VERY low at the moment. Apart from all the bruises and sore parts

etc, the news about my shortness of breath was NOT what I wanted to hear.


Apparently all is not good with the heart. The in and out pressures are 

not equal, showing the heart is under compression and struggling etc.




Also there is "furring up" of my main arteries. This has come as a huge blow

to me as I had hoped the heart was doing okay, and this was a fluid related

"glitch".... It sounds more serious to me...


Not sure where this is going.....



Very sad.....


Home - Cancelled...

by The Squirrell 3. February 2013 13:43

Well I am home !


Sadly (for me) the operation/s got cancelled. (Good news for the

emergency that needed the theatre though, so all good!)


QEH to rebook me... Watch this space!


In QEH....

by The Squirrell 1. February 2013 19:49

Bit of a worry...


Went in for a routine appointment and have been admitted.!


Very axious. I have ben short of breath, listless, lethargic etc

and turns out I have fluid around my heart. QEH have been

as effective as ever and jumped straight on the problem.


I am in for op/s tomorrow so watch this space!

(And wish me luck please!!)



About Matt.

My name's Matt. I was born with a congenital heart defect which hampered me in my youth, and sadly became a terminal conditon recently, and beyond the (amazing) care of the BRI-Bristol Heart team.

In 2008, my condition deteriorated, to a point I was happy to see Xmas 2008. I had prepared to die.

Then in January 2009, a late night phone call from QEH-Hospital Birmingham changed my world, when they offered me a heart transplant, if I could get there pronto!!

6 months on, after a rocky start, I am still alive, thanks to them!

Read on to see how my new life is taking shape, and my adventures to date!....



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