I feel wiped out!....
Since I found out I have rejection, I have been feeling
REALLY low. I have worked SO hard to watch my diet,
exercise, make the most of EVERY day, take my various
pills on time, check my weight, and temp etc meticulously,
that I (niavely!) thought I could hold off rejection! (Dumb eh?!)
I feel totally dejected, and depressed and my normally positive
attitude is slipping away.......When QEH rang, they told me to take
100mg of a drug on Thursday, Friday, and Saturday, then drop back
to my usual dose of 10mg. I think taking 10x times the usual
dose has really hit home now! I ache, all my joints hurt, I feel
exhausted, and sleep until almost lunchtime, (BUT seem to have
become nocturnal? I lie awake until 5 or 6am, before I get tired?)
The new (Anti viral?) drug is also some horrid stuff, it makes me feel
really sick all day, and gives me a banging headache that I can't shift!
(And leaves an acidic taste in the mouth, like you've just been sick?)
I really feel like I have had a good kicking, everything hurts, and I just
can't shift this lethergy, and drowzyness all day. I go out in the fresh
air and push myself to go for a walk, but it hurts so much I almost cry,
and I feel my eyelids getting heavy even in this temperature!
Can't wait to get back to QEH, I need to know whats going on....
The waiting is awful....